crowdsourcing.md

About

This file collects information on crowdsourcing in relation to research, especially with respect to data curation and research funding.

Target communities (sub-crowds)

• Researchers
• via journals
  • expanding the Topic Pages approach to other areas, especially rare diseases and neglected tropical diseases
• via societies
• via market places, e.g. Assay Depot (see also From open source to open science), Oncomine, Ingenuity
• via beginner-friendly code
• Patients
  • NHS involves patients in peer review of funding proposals
  • Patient Innovation
    • awards
  • Tal Golesworthy How I repaired my own heart
    • lots of gems in there, e.g. data conversion problems and social hurdles
    • Personalized External Aortic Root Support (PEARS)
    • ExoVasc® Personalised External Aortic Root Support
  • 16 Year Old Develops Bluetooth Smart Solution to Keep Alzheimer’s Patients from Wandering
    • SafeWander™
  • What does patient and public involvement (PPI) in research mean?
  • INVOLVE
    • People in Research
  • Get My Health Data
  • PatientHack
    • Understanding the Dynamics of Hackathons for Science
• Physicians
  • PDQ (Physician Data Query)
• Students
  • IFSMA
• Data scientists
  • Big Data Challenge
  • The Galaxy Challenge
  • Higgs Boson Machine Learning Challenge
  • Diabetic Retinopathy Detection challenge
  • AAIA'15 Data Mining Competition: Tagging Firefighter Activities at a Fire Scene
  • Explanation of the winning strategy
  • CrowdAI
• Public
  • Open Data Stack Exchange
  • Open Science Stack Exchange (closed)
  • Open Science Q & A
  • UK prize lets public decide on world's biggest science problem
  • Realising the potential of citizen science
  • NSF: Invest strategically in public participation in science, technology, engineering, and mathematics research (PPSR)
  • The BK BioReactor - Investigating the Unseen Microbiology of the Gowanus Canal
    • summary tweet
• Personal Genomes
  • Open Humans

Examples

Data curation

• Gene Wiki
• Rfam/Pfam
• WikiPathways
• Wikidata
  • Wikidata for Research
    • Wiki4R – a Horizon 2020 proposal (drafted in the open) about using Wikidata in research contexts
    • Importing into Wikidata from external (curated) datasources
      • Establishing Wikidata as the central hub for linked open life science data
      • Utilizing the Wikidata System to Improve the Quality of Medical Content in Wikipedia in Diverse Languages: A Pilot Study
        • allows to pull from Wikidatainto Wikipedia
    • Importing from Wikipedia into Wikidata Wikipedia Knowledge Graph with DeepDive
  • Dengue fever
  • Pathogen transmission ontology
  • WikiProject Chemistry
  • NIH-related properties
• Wikigenes

Research funding

• Science prizes
  • Examples:
    • Space Apps Challenges
      • Category: Humans
        • Data Treasure Hunting
      • Submissions overview
    • NCI/SYNAPSE Challenge
    • Leamer-Rosenthal Prizes for Open Social Science
    • Ecosummit Award 2015
    • Apps4EU
• Competitions
  • Competitive programming
    • In Praise of Tweaking: A Wiki-like Programming Contest
  • Head Health Challenges
  • Obesity Data Challenge
  • Knight News Challenge
• Crowdfunding Scientific Research
  • need to collect examples of crowdfunding campaigns for research, analyze criteria for success (both financial and engagement-wise), and explore options for funders to interact with them
    • successful
      • [OpenWorm]( https://www.indiegogo.com/projects/timmy-s-journey-a-statistics-game https://www.kickstarter.com/projects/openworm/openworm-a-digital-organism-in-your-browser)
    • unsuccessful
      • Timmy's Journey: A Statistics Game
  • MoleCures
  • SciFund
  • Experiment.com
    • Using Nanoparticles to Activate Immune Cells to Fight Tumors
  • MoleCures
  • Wallacea
    • Worlds First Imaging Study of the Brain on LSD
  • Crowdfunding a licensing switch from closed to FLOSS
  • RIO Journal — a public proposal can function as a call for funders (and collaborators, and equipment etc.)

Peer review

• Reminder About Your Responsibilities in Maintaining the Integrity of NIH Peer Review
  • "We all share the same objective: ensuring a fair review, free of bias, so that the most meritorious applications are identified for funding consideration by NIH. The peer review system belongs to the entire biomedical research community, not just to NIH — let’s do all we can as a community to preserve its integrity."

Medicine and Wikimedia

• WikiProject Medicine
• Wiki Project Med
• Wikipedia and Medicine: Quantifying Readership, Editors, and the Significance of Natural Language
  • commentary
• Wikipedia as a basic scientific reference
• Discovering new diseases with the internet: How to find a matching patient
• Advice For Rare Disease Advocates Editing Wikipedia Entries
• Families Isolated By Rare Genetic Conditions Find New Ways To Reach Out
• Gratipay

Journals

• Research Involvement and Engagement

See also

• EU-Citizen.Science
• Neuchâtel herbarium
• List of highest funded crowdfunding projects
• Holdren memo: Addressing Societal and Scientific Challenges through Citizen Science and Crowdsourcing
• The Organization of Scientific Research in Open Collaborative Projects
• Runkeeper & Research: The Keeping Pace Study
• ESA's cool new interactive comet visualization tool based on amateur imaging work with open data
• SmartRoadSense — measures road quality in Italy using triaxial accelometers in smartphones
  • paper
• Ten principles of citizen science
• The Invisible Prevalence of Citizen Science in Global Research: Migratory Birds and Climate Change
• Rise of the citizen scientist
• The Rise of Citizen Science, Part I: A Principled Approach
• Citizen Scientist’s Algorithm Helps Science Gossip Team to Reduce Text-only Pages
• Measuring Success in Citizen Science Projects, Part 1: Methods
• Crowdsourcing in business and management disciplines: an integrative literature review
• Engineering Collaboration — How the way we code affects participation
• NARA's Citizen Archivist Dashboard
• The Challenge of Partnerships: ‘The Good, Bad and Ugly’ of Prize Collaborations
• How citizen scientists discovered a giant cluster of galaxies
• New species discovered online
  • Crane fly et al.
  • Frog and snail
• Given Enough Eyeballs, All Bugs Are Shallow? Revisiting Eric Raymond with Bug Bounty Programs
• Bird photo booth
• "Bento Lab is the first complete DNA laboratory, suitable for a beginner to a professional"
• IdeaScale
  • IdeaBuzz
• AAAS Crowdsourcing and Citizen Science Affinity Group
• Have a scientific passion? Become a citizen scientist
• Globe at night
• Transcribe Bentham — about 40k manuscripts by London philosopher Jeremy Bentham (1748 – 1832)
• People-led Research: A strange, sleeping giant
• Aaron Swartz and the Price of Information
• Beluga Bits
  • introductory blog post
  • seen via https://twitter.com/astromonocyte/status/1006944507143876608
• How can citizen science contribute to data rescue? — on usability / user experience
  • positive example: https://www.oldweather.org/ (engaging)
  • negative example: http://www.data-rescue-at-home.org/
• frogwatching - charting climate change’s impact in the here and now
• Das Leben als Labor: Wissen? Schaffen Wissenschaftler. Bisher. Neuerdings beteiligen sich Millionen Laien an Forschungsprojekten. Über Theorie und Praxis der Citizen Science.
• Open Fire Map
• WheelMap